Fibular Hemimelia

Well our results from the geneticist came back.  Kinsley has what is called Fibular Hemimelia.  Fibular hemimelia is the complete or partial absence of the fibula bone.  It is a mild form thank goodness, because severe forms have lots of surgeries to fix it.  The x-ray showed that her fibula and tibia were both shorter than those in her right leg.  It also showed that her femur is shorter, which we had no clue about.  It is her 2nd toe that is missing.  There was not x-rays taken of her ankle but it seems like she might have a ball and socket joint instead of a hinge joint.  This is making it a little hard for her to walk but she is adjusting.  So for treatment the ankle could have to have a reconstruction but that all depends on how the orthopedic thinks she is doing with it.  She will have to have some sort of lift for the leg difference.  And of coarse she will have different shoe sizes.  When she is close to done growing the doctors will go into her good leg and put a staple in the growth plates so that the leg stops growing so the leg difference can even out.  That is for a difference of 2 inches or less.  If by some chance there was more of a difference (which does not look likely) she would have to have some very serious leg lengthening surgeries.  Thank you Jesus it is not supposed to be that far off.  It is a little scary thinking about them messing with the good leg.  But I guess that they can watch the growth until then to be able to tell when to stop the growth in that leg.  I am relieved that it was not the other problems the geneticist was looking at (one that can cause cancer)!  This will only affect her leg, not her health.  My heart does break for her with the problems she does have.  The poor girl already has a limp :(  But I know God will take care of her and she is so pretty and sweet and tough that she will be able to handle any teasing she receives.  It does feel good to finally know for sure what is wrong with her leg.